Posts

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First off, I would like to start of by apologizing for not sharing a new post on the blog in a few, I had somethings that I had to deal with separate from having an illness. I won't say I am sorry for my overall disappearance, because having IC will make anyone disappear for a while. I for one am a person who will take a step back from things even when at times I know that I don't want to but I know that I need to. 

During a fare, especially when its really bad, I tend to come outside of myself, and cant think straight all the time, especially when its a double flare. What is a double flare or a flare period?  I am sure your asking yourself this question.  For me a flare is an increase in my symptoms that are already always present, which more urination, urgency, back, kidney and bladder pain, and pain in my navel, which includes burning in my bladder, back and kidneys. ( NO I DON'T HAVE A UTI OR A KIDNEY INFECTION!!!) 

I am sure you also wondering when and how often do I fl…
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Meet Zoe as she express the hardship, she is faced with daily dealing with Interstitial Cystitis.  Each and everyone of us is affected by the same illness and we can all relate with pain and symptoms, but each person's side of the story will always be different and unique in each and every way. 


I worked full time as a licensed cosmetologist and I also worked out in the gym 5 days a week. I have one son (his name is Justin) and he and his wife have blessed me and my husband with 4 amazing granddaughters. We also have 4 other grand children from my husband’s side.They are all such a joy!
One day I had my semiannual GYN appointment and got this news.Dr. said that I had several very large fibroid tumors in my uterus and a total hysterectomy was suggested. Beings I was past the age of child bearing (at least in my thinking) I decided to go through with the surgery.I went back to my GYN after having done all of the blood work to sign consent forms. It was advised to me that I should also…
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Meet Gina Cafone, here's her story on how IC has changed her life, as she discusses how she has traveled across the country to find doctors that will help with this condition-especially in the later stages of this illness. She discusses the cost of medication, treatments, and surgeries living with a severe bladder condition. Additionally, she also explains how living with a debilitating bladder condition has affected her work, career, and how she has tried to stay strong while being a single parent at the same time. Short Note: For anyone who is pregnant, given birth, has had any severe trauma to the pelvic region of your body(including lower back pain & your tailbone), I hope you will read what can happen to your pelvic floor muscles. My back story and how I was diagnosed with IC. Hello Everyone..My name is Gina and I am a long-term survivor of Interstitial Cystitis for the past 22 years. Many have difficulty saying the word let alone understanding what it is exactly. To give y…